Insomnia

Too Pooped To Celebrate The Holiday

So, yesterday was our Thanksgiving Holiday. I managed to make my cranberry compote and bake a pumpkin pie but that’s as far as I got.

My husband was kind and said it was ok, we could do the big meal today. I could tell he was bummed though.

Before we got married, I told him I had MS and I was a lot more active then.. he didn’t really believe it because (like a lot of people) he thought I’d be in a wheelchair if I had MS.

I was sorry I couldn’t get our holiday meal together this year but my PPMS got a lot worse in the last 12 months. I’ve even simplified cooking as much as possible. Today, my hubby helped prep some foods and I think that helped him a bit. The turkey’s in the oven, we’re watching football and all the dinner things will be ready in an hour or so.

Unfortunately, I’m so fatigued I’ll get everything heated and ready and then I’ll go to bed. I hate leaving my companion to eat alone but there’s no other choice.

How about you ? Does this happen to you too for whatever reason ? A lot of people work more than one job and have these same issues. Let’s give each other a big hug… And then another piece of pie.

Tight Isobars = Headaches and Increased Pain

www.weather.com/storms/winter/video/strong-storm-bringing-snow-rain-and-strong-winds-from-west-to-central-us-into

Keep an eye on the isobars as this storm moves across the country and over your area. I can see that it’s going to be low pressure and high winds over me, in Arkansas, building from Wednesday and staying into Saturday. What does this tell me ? How tight the isobars are to each other indicates how strong winds will be so I know right now to get as much done as possible before Thanksgiving because I’m going to have bad sinus and head pain.

Watching wind and pressure changes can give you advance warnings of increased pain. Get weather smart and you’ll be prepared for possible pain that could affect your social life 😊

The Brain: “Ringing in the Ears” Actually Goes Much Deeper Than That | DiscoverMagazine.com

Research on tinnitus has shown that it’s rooted in the very way we process and understand sound.
β€” Read on discovermagazine.com/2010/oct/26-ringing-in-the-ears-goes-much-deeper

Kombucha Tea Not the best choice for MSrs

I used to drink kombucha tea in the 60’s when it was just a nice, bubbly Japanese brew. Now that it’s become really popular, some makers touting all kinds of questionable benefits, I decided to check and see if it would be ok for me to enjoy because I like the taste.

Since it may increase immune system activity, it seems to not be a good choice if you have MS or other immune system diseases.

Kombucha fermentation

Here’s a report from the Mayo Clinic :

What is kombucha tea? Does it have any health benefits?

Kombucha tea is a fermented drink made with tea, sugar, bacteria and yeast. Although it’s sometimes referred to as kombucha mushroom tea, kombucha is not a mushroom β€” it’s a colony of bacteria and yeast. Kombucha tea is made by adding the colony to sugar and tea, and allowing the mix to ferment. The resulting liquid contains vinegar, B vitamins and a number of other chemical compounds.

Proponents claim kombucha tea helps prevent and manage serious health conditions, from blood pressure to cancer. These claims are not backed by science. Limited evidence suggests kombucha tea may offer benefits similar to probiotic supplements, including promoting a healthy immune system and preventing constipation. At present, however, valid medical studies of kombucha tea’s role in human health are very limited β€” and there are risks to consider.

There have been reports of adverse effects, such as stomach upset, infections and allergic reactions in kombucha tea drinkers. Kombucha tea is often brewed in homes under nonsterile conditions, making contamination likely. When improperly manufactured ceramic pots have been used for brewing, lead poisoning has occurred β€” the acids in the tea can leach lead from the ceramic glaze.

In short, there isn’t enough evidence that kombucha tea delivers on its health claims. At the same time, several cases of harm have been reported. Therefore, the prudent approach is to avoid kombucha tea until more definitive information is available.

Fear of Fireworks

Although we may have enjoyed fireworks long ago, those of us with MS, Neurological Diseases and PTSD run and hide from the snaps, crackles and booms that come with the beautiful displays.

The sudden, loud sounds are a severe shock to the system, causing agitation, unease and downright panic in some. A lot of people around us don’t understand this reaction at all and may make light of it or just brush us off as “Nervous Nellies”… The equivalent of being cowardly or unable to handle a little fun.

It’s at times of national celebrations, such as our 4rth Of July today in the US, that a large part of our population tries to hide from the noises, many curling up under the blankets until it’s all over. With that in mind, here are some tips you might find useful :

If you’re ok in crowds, you could still watch the outdoor celebrations while wearing ear plugs plus noise cancelling headphones…. Don’t forget your insect repellent, those bites can add to your agitation.

IF you can’t go out in the summer heat like me, here are the tricks I use to get through it all.

1. I take an herb or prescription med to calm nerves before any noises begin (and in Arkansas, where fireworks are legal) my “calming” supplements start early in the day. I use 5mg of Valium or kava kava with chamomile+lavender iced tea as needed through the day and evening. Never take kava with any CNS suppressants or muscle relaxers !

2. When fireworks really get going I put in earplugs and wear noise cancelling headphones to listen to radio or a book. If you don’t have these things you can turn up a radio or your tv to drown out the outside noise.

3. I wear my sunglasses to shut out bright flashes.

4. I let myself have any treat I want….hmm, I’d better check my freezer right now for coffee gelato and Chunky Monkey !

If you have any tips please tweet them so others can find the relief they need and I hope you can enjoy your holiday.. Just give yourself extra special care.

It’s Been A Really Hard Year

Dear People,

I must apologize to everyone who has written me lately or asked questions about music. It’s just been an awful health year so far and I’ve been struggling to function. I know you all understand so please, don’t lose faith in me. All your letters and questions and comments mean the world to me and really cheer me up during hard times.

I still have plenty of creative ideas but my brain and body just won’t play ball. Never the less, I do not lose hope of publishing something fresh… Eventually.

I hope this finds you all well, happy and healthy. My advice is this.. If there’s something you want to do, do it ! You really never know what might get in your way as your life rolls along.

I’ll leave you with a general depiction of how I feel about being ill so often.

Enjoy.

 

 

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